English community

I am always in awe of all the information and support in this group. I, like all of us sometimes have a hard time getting my ...

@lbarr72 Thanks 🥰. ...

@Tanja Thank you so much for your continued support. I love your analytical mind and the way you can decipher all those ...

Thank you @Gloho for sharing all this incredible info with us. The Teal Sisters give me hope in this battle, and a wonderful sense ...

@Strongwoman I, too, missed you and wonder what happened. You were the moderator when I came on this Blog 2 years ago. And I felt ...

@GloHo. Thank you for including us in your pathway and thoughts. Wow - great to hear that you have options. Both, Elahere and ...

@LeslieA Thank you so much for your support and understanding. I feel so much support on this site. 🥰 ...

ARC101 A Phase 1 Study of ARC101 in Advanced Solid Tumors START DATE TO BE DETERMINED The trial nurse called ...

@Alwayslearning Thanks so much for your continued support. My mind really is still swirling…but I heard from the trial ...

@Alwayslearning OMG…haven't thought about that song in a while…but it has rattled through my brain a few times throughout ...

@Camper62 Hi. I suffered cold chills during one of the trials I was on. My cold chills would start about half-hour ...

Glo Ho, I really appreciate your frank update about how things are for you. We are all at different stages of this illness, ...

@GloHo thank you for your raw honesty on your feelings. I TOTALLY understand even though I'm not in the same situation or place ...

Hello Strongwoman, I have been thinking about you every day since you posted your update. I appreciate so much the unvarnished ...

@GloHo you remind me of that song "Tubthumping" by Chumbawamba. Lyrics, "I get knocked down, but I get up again. You're never ...

@GloHo I'm so sorry this trial didn't work however we are all so appreciative of you continuing sharing of your experience and ...

What's next for me? Well, surprise, surprise, I still have options. Yes…plural!!! I was not expecting that at all. ...

CX-5461 Phase 1 study to find the right dose of CX-5461 and to look at what effects CX-5461 have in patients with solid ...

@Camper62 did you ever find your answer to the cold sweats?

@Strongwoman I appreciate you being here. Funny you mention your husband organizing and stuff. This was my husband at the beginning ...

@Strongwoman thank you for sharing your insight. Glad you have a great team behind you.

@Sylviequebecbc I was going to suggest legs could be lymphedema but looks like you already found that out. Sorry to hear your ...

@Alwayslearning 🙏🏻🙏🏻thank you ...

@Meinvan you be wherever you need to be in this journey. If you want to vent...we are here. We have all done it. We all continue ...

Hi @Strongwoman your voice has been missed on this site! Sorry to hear about the growth progression. I do hope that radiation ...

@Strongwoman Hi!! Thank you for taking the time to share your update with us. I miss your words of wisdom and insights ...

@lbarr72 , I agree I'm just not there mentally yet. I'm still trying to hold on for dear life. I think I'm still in the anger ...

@FrogProf , thank you for sharing your experience. I'm going to keep prayer for no resection or ostomy needed when we go in there. ...

While living wills, DNRs and final plans are not something any of us planned to rush to do I have to say there is some peace in ...

@FrogProf thank you for sharing! #Healthandwellness #Exercise

@FrogProf I thank you for your comment on the "living will". While not everyone is in the same place or state of mind relative ...

@GloHo thank you as always for sharing your trial information. I too hope that the rise in the CA-125 is an expected outcome ...

Hi @TiffanyM do you recall who at OCC you spoke with? Just wondering if there's an existing pathway for folks to continue to ...

Thanks so much for the resources😊 ...

Hello, Teal Sisters! I echo others about the benefits of exercise. I was fortunate enough to participate in two exercise studies: ...

Hello, Meinvan and other Teal Sisters I, too, faced the possibility of a bowel resection and colostomy bag. My wonderful oncologist ...

Hello Ya I have been MIA. I called in and asked for a CT scan to be done due increase in symptoms and frequency of them. ...

@GloHo I cross my fingers for a good CT result! Thx for the details in update. I feel for you.

Thanks so much for the update, GloHo. Hopefully, the increased CA-125, is to be expected and it will start decreasing soon. ...

@Meinvan you ARE definitely a warrior. When you are in recovery mode we will all be here virtually to help you through it!!

@asatino thank you. Yes I'd like to turn my thoughts off until after the surgery.

@lbarr72 . Thanks for your perspective. Yes, most days I don't feel like a warrior yet, but as I go through this I'm sire there ...

@Flory yes I have to believe I'm in good hands with my surgeon and her team. I know they will do what needs to be done to give ...

@Tanja I agree, I have to go in knowing that we are going to get rid of all the cancer cells no matter what it takes. I'm hoping ...

@Meinvan I also feel with you, surgery is pretty invasive, on the other hand, me too, I felt to just get it cut out, every last ...

CX-5461 Phase 1 study to find the right dose of CX-5461 and to look at what effects CX-5461 have in patients with ...

Beautiful said Ibarr72. so glad that you are feeling and doing well. We need to live in the present moment and enjoy ...

When i was diagnosed 2 years ago, I had no difficulty choosing to go for debulking surgery and chemo, as I knew I was dangerously ...

Sending love and positive energy your way. And of course it is totally understandable that you are scared. The mind is a powerful ...

@Meinvan sounds like you are in very good hands. I completely understand how you feel. I struggle with my anxiety every ...